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For Second Year in a Row, Team Garrett to Run 'America's Finest City 5K or Half Marathon' in Honor of Young Man with Rare Disorde

 
For Second Year in a Row, Team Garrett to Run  'America's Finest City 5K or Half Marathon'  in Honor of Young Man with Rare Disorde
Posted Tuesday, August 19th 2014 @ 10am

For Second Year in a Row, Team Garrett to Run 'America's Finest City 5K or Half Marathon' 
in Honor of Young Man with Rare Disorder

Over 100 Athletes Dedicate Race to ‘a Real Hero’

SAN DIEGO -- This Sunday, August 17th, 106 athletes, collectively known as Team Garrett, will run "America's Finest City 5K or Half Marathon" in San Diego to help fight a disease called neurofibromatosis (NF), particularly on behalf of Garrett Baumann, a 25-year-old who lives with neurofibromatosis type 2 (NF2) and inspires this team in their mission.

Team Garrett consists mostly of Baumann's friends and family who, as members of the NF Endurance Team, will be competing in the 5K or half marathon to raise funds for the Children's Tumor Foundation (CTF), a nonprofit whose mission is to end neurofibromatosis through research. NF is a genetic disorder that can cause tumors to grow on nerves throughout the body and affects one in every 3,000 people. Currently there is no cure or effective treatment for NF.

Unfortunately, Garrett's condition has worsened dramatically over the past year. His body is shutting down, he is in constant, severe pain, and he may enter hospice care soon. Before Garrett was diagnosed with NF2 at age 11, he was an active child who loved karate, skiing, hiking, and fishing. Now he is too weak to even attend sporting events. Over the past 14 years, he has endured numerous operations to remove, radiate, or debulk some of the many tumors in his brain, spine, arms, neck, side, and back. NF2 has rendered Garrett deaf on his right side, taken fifty percent of the hearing in his left ear, and limited his vision. Due to the tumors in his neck, he can no longer enjoy meals with his family; he now obtains nourishment through a feeding tube.

“Neurofibromatosis takes things away from you,” said Garrett, “but it also adds to your life in amazing ways, like the support and friendship I have with Team Garrett and the NF Endurance program, both of which fill me with gratitude. I may not be strong enough to run with my family and friends on Sunday, or even attend the race and cheer them on, but their efforts on my behalf and their love and encouragement are blessings.”

About the NF Endurance Team
The Children's Tumor Foundation NF Endurance Team is a national program in which participants run, bike, and swim in events across the country to raise NF awareness and funds for research. In 2013, the NF Endurance Team had nearly 800 participants in races across the country, raising close to $1 million. NF Endurance athletes range from first-time 5K participants to Ironman competitors, and the Team recently initiated a Kids Run program to involve children in fitness and fundraising for the cause. To learn more, please visit www.nfendurance.org.

About Children’s Tumor Foundation
The Children's Tumor Foundation is a 501(c)(3) not-for-profit organization dedicated to finding effective treatments for the millions of people worldwide living with neurofibromatosis (NF), a term for three distinct disorders: NF1, NF2, and schwannomatosis. NF can cause tumors to grow on nerves throughout the body and may lead to blindness, bone abnormalities, cancer, deafness, disfigurement, learning disabilities, and excruciating and disabling pain. NF affects one in every 3,000 people, more than cystic fibrosis, Duchenne muscular dystrophy, and Huntington’s disease combined. The Children’s Tumor Foundation funds critical research into neurofibromatosis. In addition to benefiting those who live with NF, this research is shedding new light on several forms of cancer, brain tumors, bone abnormalities, and learning disabilities, ultimately benefiting the broader community. For more information, please visit www.ctf.org.

Contact:

 

Simon Vukelj
Director of Communications
Children's Tumor Foundation
212-344-7568
svukelj@ctf.org

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